PMP PALS' Network
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                                                                                                                                                                  PMP Pals' Network: About Us
                                                                                                                                                                  Resources, Referrals, Research and Support!

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                                                                                                                                                                  The PMP Pals' Network serves patients, their family caregivers and healthcare providers in 49 countries!

                                                                                                                                                                  PMP Pals' Network Mission Statement

                                                                                                                                                                  The PMP Pals’ Network is volunteer, worldwide resource and referral service for patients,their family caregivers, and healthcare providers affected by Peritoneal Surface Malignancies and all cancers of the digestive system including Appendix cancer, colorectal cancer, mucinous adenocarcinoma, peritoneal carcinomatosis, pancreatic cancer, DPAM, mesothelioma, signet ring cell and pseudomyxoma peritonei and all peritoneal surface malignancies.

                                                                                                                                                                  The goals of the PMP Pals’ Network® include the following...

                                                                                                                                                                  To assist and serve newly diagnosed patients, and their caregivers, as a source of information, resources, referral and support for appendix cancer and all peritoneal surface malignancies, including pseudomyxoma peritonei,


                                                                                                                                                                  To share resources and information to assist patients in living well with the challenges of Appendix Cancer, Pseudomyxoma Peritonei, Peritoneal Carcinomatosis and related diseases, and

                                                                                                                                                                  To provide assistance to patients and their family caregivers in preparing for, and recuperating from, surgery and/or chemotherapy.

                                                                                                                                                                  We are a volunteer patient advocacy program, representing the needs of patients and their immediate family caregivers.


                                                                                                                                                                  When you become a "Pal Patient" or Pal Family Caregiver" your questions won't be left floating  in cyberspace...we are here and are ready to assist you!

                                                                                                                                                                  _Our volunteer "grass roots" program serves patients and their families in 49 countries and in more than a dozen languages!
                                                                                                                                                                   
                                                                                                                                                                  Developed by a cadre of ten dedicated patients and family caregivers in Holland, the United Kingdom and the United States in 1998, our goals have remained consistent and proven to be successful for more than a decade.
                                                                                                                                                                   
                                                                                                                                                                  Our mission has been to assist patients in obtaining the best possible medical care/treatment for rare cancers/diseases affecting the digestive system,
                                                                                                                                                                   
                                                                                                                                                                  To provide practical resources and support (financial, health insurance, transportation, etc.)
                                                                                                                                                                   
                                                                                                                                                                  To provide pre screened, trained and vetted "Pal Mentors" to share helpful suggestions for pre and post treatment recuperation,
                                                                                                                                                                   
                                                                                                                                                                  To educate the public about our rare disease, treatments for our disease and the need to support research for treatment,
                                                                                                                                                                   
                                                                                                                                                                  And, in conjunction with our first goal, to interview, vet and publicize responsible healthcare providers who demonstrate expertise in the treatment of our disease.

                                                                                                                                                                  PMP Pals' Network Resource and Support Programs®

                                                                                                                                                                  Among our more than two dozen specialized Pal Resource and Support Groups are:

                                                                                                                                                                  Chemo Pals (for patients receiving systemic or HIPEC chemotherapy treatment)

                                                                                                                                                                  Gastrectomy Pals (for patients living without a stomach)

                                                                                                                                                                  Ostomy Pals (for patients living with an ileostomy, colostomy or urostomy)

                                                                                                                                                                  Young Families (for patients raising young families)

                                                                                                                                                                  Mucinous Adenocarcinoma Pals

                                                                                                                                                                  Senior Pals (ages 65 to 90 years young!)

                                                                                                                                                                  …and a variety of regional programs, including

                                                                                                                                                                  Australian Pals, British Pals, Pacific Rim Pals, Texas Pals, etc.

                                                                                                                                                                  PMP Pals’ Network Program Services

                                                                                                                                                                  In addition to referring patients to experienced healthcare providers, we provide the following services to our Pal Members:

                                                                                                                                                                  The Pals' Mentoring Program®, matching patients and their caregivers to specific Pal Mentors based on each patient's diagnosis, gender, surgeon, and special needs. Introductions  and connections are provided via email, telephone calls, postal letters, personal visits, and SKYPE,

                                                                                                                                                                  A subscription to the weekly PMP Pals' Network Newsletters,

                                                                                                                                                                  Copies of our series of three PMP Pals' Network Handbooks and Workbooks;

                                                                                                                                                                  "Preparing for Physician Consultations",
                                                                                                                                                                  "Preparing for Surgery" and
                                                                                                                                                                  "Resource Guide for Patients and Family Caregivers"

                                                                                                                                                                  Free books and booklets for general cancer care including a wide variety of helpful literature for both patients and caregivers

                                                                                                                                                                  Participation in our annual conference


                                                                                                                                                                  Use of our extensive website, www.pmppals.org

                                                                                                                                                                  All English, Italian, Portuguese and Spanish language inquiries are responded to within 1-12 hours of receipt.

                                                                                                                                                                  All other language inquiries are responded to within 1-24 hours of receipt, depending on time zone(s).


                                                                                                                                                                  PMP Pals' Network History

                                                                                                                                                                  In 1998 patients and family caregivers in the US, the UK and Holland, realized the need to exchange resources about medical treatment options, research, clinical trials, preparation and recuperation from/for surgery and/or chemotherapy, assistance with health insurance and disability claims, transportation and family lodging near cancer centers, etc.

                                                                                                                                                                  The need for personal interaction among patients and family caregivers was not being met via internet message boards and forums, thus Appendix Cancer and Pseudomyxoma Peritonei patients and their families created the PMP Pals' Network, providing opportunities for patients and families to personally meet, talk via the telephone (and eventually SKYPE), send personal letters, and exchange direct email with one another.

                                                                                                                                                                  During the past fourteen years, the PMP Pals Network of volunteers has expanded to include 49 countries and assists patients in 12 languages.


                                                                                                                                                                  Founding Members of the PMP Pals’ Network®
                                                                                                                                                                  The "Original Ten" PMP Pals (1998!)

                                                                                                                                                                  Elizabeth Collins
                                                                                                                                                                  Henry den Hartog, PhD
                                                                                                                                                                  Bernard Goldberg
                                                                                                                                                                  Gabriella Graham
                                                                                                                                                                  Sara Shatford Layne, PhD
                                                                                                                                                                  Charlotte Lindon
                                                                                                                                                                  Edie McCall
                                                                                                                                                                  Tom & Joan Panek
                                                                                                                                                                  Audrey Ragan

                                                                                                                                                                  Patient and Family Advisory Council of the PMP Pals’ Network®

                                                                                                                                                                  Rene Bosch, PhD, Holland, Patient
                                                                                                                                                                  Susan Cardy, OCT, Hons. BA, BEd, Canada, Family Caregiver
                                                                                                                                                                  Sara Shatford Layne PhD, United States, Family Caregiver
                                                                                                                                                                  Edward F Maguire BA MHA FACHE, United States, Cancer Survivor
                                                                                                                                                                  Ulrike Mandigo, RN, Germany, Family Caregiver

                                                                                                                                                                  Jim Meyers, DrPH, MHA, FACHE
                                                                                                                                                                  , USA, Cancer Survivor
                                                                                                                                                                  Ron Ordona, RN, MSN, Philippines and USA, Family Caregiver
                                                                                                                                                                  Marilyn Price, BA Ed Ad, Australia, Patient
                                                                                                                                                                  Sandra Rhoades, RDH,MPH United States, Family Caregiver
                                                                                                                                                                  AC Roemhild, United States, Cancer Survivor
                                                                                                                                                                  Brian B Spillane, MS, United States, Cancer Survivor
                                                                                                                                                                  Jeanie Sutherland, RN, United Kingdom, Cancer Survivor 



                                                                                                                                                                  Editorial Council of the PMP Pals’ Network®

                                                                                                                                                                  Evan Bukey, PhD
                                                                                                                                                                  Gabriella Graham
                                                                                                                                                                  Sara Shatford Layne, PhD
                                                                                                                                                                  Brian B. Spillane, M.S


                                                                                                                                                                  Nutrition Advisory Council of the PMP Pals’ Network®

                                                                                                                                                                  Sandra Rhoades, PMP Pals, Family Caregiver
                                                                                                                                                                  Bachelors of Science in Dietetics
                                                                                                                                                                  Master of Public Health in Nutrition


                                                                                                                                                                  Dental Advisory Council of the PMP Pals' Network®

                                                                                                                                                                  Robert Rauch, DDS, PMP Pals, Patient
                                                                                                                                                                  •Member of the American Dental Association since 1978
                                                                                                                                                                  •Member of the Connecticut State Dental Association since 1976
                                                                                                                                                                  •Member of the Milford Dental Association since 1979
                                                                                                                                                                  •Inducted into the International College of Dentists in 1998
                                                                                                                                                                  •Inducted into the Pierre Fauchard Society in 1998
                                                                                                                                                                  _ PMP Pals' Network Begins 14th Year of Service: 1998-2011

                                                                                                                                                                  January marks the beginning of the fourteenth year of service for the PMP Pals' Network!
                                                                                                                                                                  Our volunteer "grass roots" program serves patients and their families in 49 countries and in more than a dozen languages!

                                                                                                                                                                  Developed by a cadre of ten dedicated patients and family caregivers in Holland, the United Kingdom and the United States in 1998, our goals have remained consistent and proven to be successful for more than a decade.

                                                                                                                                                                  Our mission has been to assist patients in obtaining the best possible medical care/treatment for rare cancers/diseases affecting the digestive system,

                                                                                                                                                                  To provide practical resources and support (financial, health insurance, transportation, etc.)

                                                                                                                                                                  To provide pre screened, trained and vetted "Pal Mentors" to share helpful suggestions for pre and post treatment recuperation,

                                                                                                                                                                  To educate the public about our rare disease, treatments for our disease and the need to support research for treatment,

                                                                                                                                                                  And, in conjunction with our first goal, to interview, vet and publicize responsible healthcare providers who demonstrate expertise in the treatment of our disease.

                                                                                                                                                                  The PMP Pals' Network is proud to provide patients and their families with the most comprehensive source of practical information regarding Appendiceal Cancer, Pseudomyxoma Peritonei and all Peritoneal Surface Malignancies via www.pmppals.org, a site so popular that it has been copied by other "support groups" and healthcare industry companies.

                                                                                                                                                                  The "Pals" pride themselves in providing "real time" and face-to-face support and resources for patients and their families. In spite of the rarity of our various diagnoses, we are able to personally match liked minded patients and their families, in a manner that provides true comfort and assistance at a time when it is needed the most.

                                                                                                                                                                  PMP Pals puts the "CAN DO!" in Cancer!®

                                                                                                                                                                  We CAN outlive our prognosis!

                                                                                                                                                                  We CAN live well in spite of a challenging and rare diagnosis!

                                                                                                                                                                  We CAN find a cure for our rare disease!

                                                                                                                                                                  Affiliations of the PMP Pals’ Network

                                                                                                                                                                  American Cancer Society
                                                                                                                                                                  American Society of Peritoneal Surface Malignancies
                                                                                                                                                                  R.A. Bloch Cancer Foundation
                                                                                                                                                                  MD Anderson Volunteer Network
                                                                                                                                                                  NORD National Organization of Rare Disorders

                                                                                                                                                                  Patients' Advocacy Network
                                                                                                                                                                  UOA United Ostomy Association

                                                                                                                                                                  Countries Served by the PMP Pals’ Network
                                                                                                                                                                  The PMP Pals' Network serves patients, their family caregivers and healthcare providers in these countries:

                                                                                                                                                                  Abu Dhabi, Argentina, Australia, Belgium, Brazil, Canada, China, Colombia, Denmark, Dominican Republic, Dubai,Ecuador, Egypt, England, Finland, France, Germany, Greece, Holland, Jordan, India, Iran, Ireland, Israel, Italy,Lebanon, Malaysia, Mexico, Morocco, Nepal, New Zealand, Nigeria, Norway, Pakistan, Philippines, Poland, Portugal, Qatar,Saudi Arabia, Santo Domingo, Scotland, Serbia, South Africa, South Korea, Spain, Sweden, Switzerland, Taiwan,United States of America, and Wales


                                                                                                                                                                  PMP Pals' Network Medical Disclaimer

                                                                                                                                                                  Visitors to www.pmppals.org are encouraged to discuss publications and information contained herein with their licensed, professional healthcare providers. The information provided on www.pmppals.org is not intended as a replacement for licensed, professional medical or legal advice. Each patient’s case is unique, therefore every patient should seek guidance from a licensed, professional medical or legal source regarding his/her specific case.


                                                                                                                                                                  PMP Pals' Network Endorsement Policy®

                                                                                                                                                                  Our database includes an international listing of surgeons, oncologists and pathologists experienced in treating Appendix Cancer, Pseudomyxoma Peritonei and other Peritoneal Surface Malignancies.

                                                                                                                                                                  The PMP Pals’ Network does not endorse any particular surgeon, specialist or cancer treatment center. We simply share practical information with the intention of saving precious time in seeking medical.

                                                                                                                                                                  Each patient's case is unique and should be evaluated on an individual basis.


                                                                                                                                                                  The PMP Pals' Network does not endorse any specific healthcare providers, treatments, procedures or products. The PMP Pals' Network is not responsible for accuracy of content published on third party sites


                                                                                                                                                                  PMP Pals' Network and the HIPAA Policy

                                                                                                                                                                  The PMP Pals’ Network follows HIPAA policy guidelines with patients and family caregivers of all nations regardless of the privacy laws, or lack of, from individual countries. All members of the PMP Pals' Network are required to follow the HIPAA guidelines and must respect each patient and family caregiver's confidentiality.

                                                                                                                                                                  PMP Pals' Network Privacy Policy® 

                                                                                                                                                                  Your email address will not be sold or given to any third parties, nor will the PMP Pals' Network use it for any reason other than to keep you informed about Pseudomyxoma Peritonei, Appendix Cancer and related diseases.

                                                                                                                                                                  The PMP Pals' Network follows HIPAA guidelines to protect the privacy of patients and their families who participate in the PMP Pals Network. Therefore, the PMP Pals' Network has a no tolerance spam policy. Subscribing "Pals" or any other non subscribing individuals, groups or organizations that utilize the PMP Pals' Network physical or electronic mailing lists, including Pal Resource Group lists, without written authorization of the PMP Pals' Network, will be listed as SPAM violators and are subject to federal prosecution.



                                                                                                                                                                  PMP Pals' Network Policy on the use of Colloquialisms

                                                                                                                                                                  The PMP Pals' Network believes that Pseudomyxoma Peritonei, and related diseases, as well as the medical treatment of these diseases, should be addressed and treated with the respect deserved of any other cancerous or chronic illness diagnosis.

                                                                                                                                                                  It is with this philosophy, the PMP Pals' Network does not utilize the use of colloquialisms or "slang" descriptions when describing our disease(s), or associated medical treatment(s.)

                                                                                                                                                                  We believe that the use of colloquialisms in reference to our diseases) and treatment(s) is disrespectful to our fellow patients and to their family caregivers.

                                                                                                                                                                  We believe that the use of colloquialisms in reference to our disease(s),
                                                                                                                                                                  and to its treatment(s), is detrimental to the recognition of the seriousness of this disease by:

                                                                                                                                                                  Health insurance providers,
                                                                                                                                                                  Clinical trial researchers and their funding sources,
                                                                                                                                                                  The medical community at large, and
                                                                                                                                                                  The public, in general.

                                                                                                                                                                  Therefore, the use of colloquialisms is not included, nor allowed in publications or communications throughout our Network. Throughout our website, and in our published and verbal communications, we use the following descriptions, nouns and adjectives and request that our participating members (“Pals”) do so also:
                                                                                                                                                                  Pseudomyxoma Peritonei is referred to as:

                                                                                                                                                                  1) Pseudomyxoma Peritonei (preferred description)


                                                                                                                                                                  2) “PMP” (abbreviated second choice)

                                                                                                                                                                  Surgery is referred to as Peritonectomy,
                                                                                                                                                                  Cytoreductive Surgery or CRS

                                                                                                                                                                  Heated chemotherapy is referred to as
                                                                                                                                                                  HIPEC

                                                                                                                                                                  Mucin and mucinous tumors are referred to as such.

                                                                                                                                                                  Funding of the PMP Pals’ Network
                                                                                                                                                                  As a volunteer patient advocacy program, representing the needs of patients and their families, the PMP Pals' Network neither solicits, nor receives funding or advertising revenue from cancer treatment centers, pharmaceutical companies, or physicians who treat cancer. We support our program services through subscription dues, and from the hours of time and talents our volunteers share to serve others!


                                                                                                                                                                  PMP Pals’ Network Mentor Program®

                                                                                                                                                                  The PMP Pals’ Network believes that confident, well educated patients experience a stronger and faster recuperation than do patients who are poorly informed and fearful of surgery.

                                                                                                                                                                  We base this belief on our own personal experiences as patients and family caregivers.

                                                                                                                                                                  The PMP Pals’ Network assists newly diagnosed patients in preparing for surgery by linking them directly with specific Pal Mentors, who have personally been selected to assist each individual patient, based on maturity, successful recuperation, positive attitude, common interests and adherence to HIPAA guidelines.Pre op patients and their Pal Mentors communicate directly via telephone, personal visits,
                                                                                                                                                                  email and SKYPE.


                                                                                                                                                                  Among the topics that Pal Mentors assist patients in addressing are:

                                                                                                                                                                  Adjustment to ostomies,
                                                                                                                                                                  Post gastrectomy diet and nutrition,
                                                                                                                                                                  Returning to the work force following recuperation,
                                                                                                                                                                  Resumption of personal intimacies, post op,
                                                                                                                                                                  Applying for health insurance,
                                                                                                                                                                  Social Security disability, and other benefits, if needed,
                                                                                                                                                                  And a variety of other topics of interest to you and your family!


                                                                                                                                                                  The PMP Pals’ Network serves patients and their families in 49 countries and in more than one dozen languages.

                                                                                                                                                                  Join the PMP Pals Network and begin communicating with your Pal Mentors today!


                                                                                                                                                                  PMP Pals' Network® Medical Disclaimer

                                                                                                                                                                  Visitors to www.pmppals.org are encouraged to discuss publications and information contained herein with their licensed, professional healthcare providers.

                                                                                                                                                                  The information provided on www.pmppals.org is not intended as a replacement for licensed, professional medical or legal advice.

                                                                                                                                                                  Each patient’s case is unique, therefore every patient should seek guidance from a licensed, professional medical or legal source regarding his/her specific case.


                                                                                                                                                                  PMP Pals' Network Endorsement Policy

                                                                                                                                                                  Our database includes an international listing of surgeons, oncologists and pathologists experienced in treating Appendix Cancer, Pseudomyxoma Peritonei and other Peritoneal Surface Malignancies.

                                                                                                                                                                  The PMP Pals’ Network does not endorse any particular surgeon, specialist or cancer treatment center. We simply share practical information with the intention of saving precious time in seeking medical.

                                                                                                                                                                  The PMP Pals' Network does not endorse any specific healthcare providers, treatments, procedures or products. The PMP Pals' Network is not responsible for accuracy of content published on third party sites.  

                                                                                                                                                                  Each patient's case is unique and should be evaluated on an individual basis.



                                                                                                                                                                  PMP Pals' Network Privacy Policy
                                                                                                                                                                    
                                                                                                                                                                  Your email address will not be sold or given to any third parties, nor will the PMP Pals' Network use it for any reason other than to keep you informed about Pseudomyxoma Peritonei, Appendix Cancer and related diseases.



                                                                                                                                                                  PMP Pals' Network® ANTI-SPAM Policy

                                                                                                                                                                  "SPAM" is unsolicited email also known as UCE (Unsolicited Commercial Email). The PMP Pals' Network sends electronic communication to those individuals/entities who have initiated communication via our electronic emailbox. The federal anti-spam law went into effect on January 1st, 2004 and preempts all state laws. 

                                                                                                                                                                  The PMP Pals' Network follows HIPAA guidelines to protect the privacy of patients and their families who participate in the PMP Pals Network. Therefore, the PMP Pals' Network has a no tolerance spam policy. Subscribing "Pals" or any other non subscribing individuals, groups or organizations that utilize the PMP Pals' Network physical or electronic mailing lists, including Pal Resource Group lists, without written authorization of the PMP Pals' Network, will be listed as SPAM  violators and are subject to federal prosecution.



                                                                                                                                                                  PMP Pals' Network® Diversity Policy

                                                                                                                                                                  The PMP Pals’ Network has assisted thousands of patients, family caregivers and healthcare providers in 49 countries, and in multiple languages, since 1998, regardless of ethnicity, religion or gender.

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                                                                                                                                                                  Rare Disease Day

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                                                                                                                                                                  The PMP Pals' Network participates in, and supports, Rare Disease Day annually!

                                                                                                                                                                  PMP Pals' Network Conservation Policy

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                                                                                                                                                                  The PMP Pals' Network supports the conservation of fuel and paper products!

                                                                                                                                                                  Conserve paper and energy by subscribing to our online newletter!


                                                                                                                                                                  Visitors to www.pmppals.org are encouraged to discuss publications and information contained herein with their licensed, professional healthcare providers. The information provided on www.pmppals.org is not intended as a replacement for licensed, professional medical or legal advice.

                                                                                                                                                                  Please respect your fellow patients and caregivers by not copying or cutting and pasting any pages from this website onto yours.

                                                                                                                                                                  The PMP Pals Network is a volunteer patient advocacy program. We support* the services that we provide, including this web page, as volunteers and through subscriptions to our publications.

                                                                                                                                                                  We neither solicit nor receive funds from pharmaceutical companies or healthcare providers, thus maintaining our dedication to serving as patient advocates.

                                                                                                                                                                  Individuals or organizations who plagiarize this copyrighted website will be prosecuted.
                                                                                                                                                                  Copyright 2011 by PMP Pals' Network/All rights reserved.

                                                                                                                                                                  The PMP Pals' Network updates our website 364 days per year with a wide variety of new information to keep you informed about maintaining optimal health!


                                                                                                                                                                  Whether you seek information about research studies, health insurance, personal mentoring, diet and exercise, new treatment options, and so much more, the PMP Pals' Network is your "go to" place for information! This particular page was last updated on 01.05.12



                                                                                                                                                                  *Thank you to our Pals, Bob and Misty, USA, for sponsoring this page!
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                                                                                                                                                                  Copyright (c) 2012 PMP Pals' Network. All rights reserved. Website design by PMP Pals' Publishing. Information on this website is not intended as a substitute for licensed, professional medical advice. Each case is unique. Patients should seek the counsel of their own licensed, healthcare professional(s.)